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list price: $17.95
edition:Paperback
published: Sep 2018
ISBN:9781770403048
publisher: Self-Counsel Press

Your Child's Voice

A Caregiver's Guide to Advocating for Kids with Special Needs, Disabilities, or Others Who May Fall through the Cracks

by Cynthia Lockrey

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children's health, children with special needs
0 of 5
0 ratings
rated!
rated!
list price: $17.95
edition:Paperback
published: Sep 2018
ISBN:9781770403048
publisher: Self-Counsel Press
Description

It can be overwhelming and scary for parents to not only find out what is wrong with their child, but also get the treatment and support needed. This process can take years, with parents growing increasingly frustrated, as their child’s case appears to be falling through the cracks. Many parents find it intimidating dealing with medical professionals who seem to speak a different language.

'Your Child’s Voice' will empower parents of children with mild to moderate disabilities be the voice for their child. Too often parents are left on their own trying to navigate a complex system of diagnosis and treatment for children with special needs – especially children with less obvious needs. Drawing on the author’s experience as a patient advocate and ongoing journey of getting support for her own son, this book will include personal stories of fighting to ensure his file didn’t get lost in the system, the challenges of getting support in school, getting the tests needed in a timely manner as well as exercises and checklists to help caregivers prepare for appointments and ask for help.

About the Author
Cynthia Lockrey’s professional experience includes being a newspaper editor, magazine writer, corporate trainer, conference speaker, patient advocate, university and college instructor, community engagement advisor as well as public relations expert with over 20 years of experience. Her resume includes winning a Canadian Community Newspaper Award, three IABC awards and accolades for her conference speaking as well as corporate training. Cynthia has had the unique experience of having endured two high-risk pregnancies, with a combined 19 weeks home-based bed rest and seven-weeks hospital based bed rest. Her real life experience is weaved throughout the book in a writing style that is relatable to the reader. Following the birth of her son, after a difficult pregnancy and traumatic birth, Cynthia spent three years as a patient advocate, serving on the perinatal health committee at London Health Sciences Centre in Ontario. Through her work on this committee, she was able to provide a patient’s perspective on maternal health, labour and delivery and neonatal intensive care (NICU) at the hospital where she spent six weeks in antenatal and another two weeks in the NICU with her son. Cynthia continues to be an advocate for her son to ensure he gets the support and treatment needed, and is often asked to provide support and insight to moms with high-risk pregnancies.
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