Every parent wants their kids to be ahead of the game and have the advantages perhaps they didn’t have. But it’s an all-too-common story for parents and caregivers — especially those caring for kids with special needs or disabilities who don’t carry the more common labels (autism, ADHD) — that they are often left navigating the system and fighting to get the support needed.
Navigating a complex system of diagnosis and treatment for children with special needs — especially children with less obvious needs — can be a lonely and frustrating endeavor. Your Child’s Voice will empower parents and caregivers of children with mild to moderate disabilities to be the voice for their children, and advocate for them the best they can.
Drawing on the author’s experience as a patient advocate and her ongoing journey getting support for her own son, this book includes personal stories about fighting to ensure files didn’t get lost in the system; the challenges of getting support in school; getting tests in a timely manner; and also includes exercises and checklists to help caregivers prepare for appointments and ask for help.
• Understanding your child’s individual needs • The importance of a team captain/case manager • Who should be on your team • Getting and staying organized • Navigating wait lists and meetings • Obtaining educational assistance • Creating a support system
With the tips in this book, you will learn that you are not alone, and that you can help your child thrive.
About the author
Cynthia Lockrey’s professional experience includes being a newspaper editor, magazine writer, corporate trainer, conference speaker, patient advocate, university and college instructor, community engagement advisor as well as public relations expert with over 20 years of experience. Her resume includes winning a Canadian Community Newspaper Award, three IABC awards and accolades for her conference speaking as well as corporate training.She has been a newspaper editor, magazine writer, corporate trainer, conference speaker, patient advocate, university and college instructor, community engagement advisor as well as public relations expert with over 20 years of experience. She has won a Canadian Community Newspaper Award, three IABC awards and accolades for conference speaking as well as corporate training.After her son was born, following a difficult pregnancy and traumatic birth, she spent three years as a patient advocate, serving on the perinatal health committee at London Health Sciences Centre in Ontario. Through her work on this committee, she was able to provide a patient’s perspective on maternal health, labour and delivery and neonatal intensive care (NICU) at the hospital where she spent six weeks in antenatal and another two weeks in the NICU with her son. She continues to be an advocate to ensure he gets the support and treatment needed, which is an uphill struggle in a medical system that doesn’t recognize the unique needs of children, and the education system is challenged to support children with lesser known conditions.