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Medical Research

Cancer on the Margins

Method and Meaning in Participatory Research

by (author) Judy Gould, Jennifer Nelson & Sussan Keller-Olaman

University of Toronto Press, Scholarly Publishing Division
Initial publish date
May 2009
Research, General
  • Hardback

    Publish Date
    May 2009
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  • Paperback / softback

    Publish Date
    May 2009
    List Price
  • eBook

    Publish Date
    May 2009
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Cancer on the Margins presents the findings of the Ontario Breast Cancer Community Research Iniative, an organization created to investigate the experiences of women with breast cancer from marginalized and underrepresented groups. The authors examine the psychosocial needs of women living with breast cancer, while investigating differences in treatment, care, and survivorship amongst Aboriginal women, women of colour, francophone women, lesbians, as well as young women, lower-income women, and women in rural areas.

Structured as a guide for similar research, Cancer on the Margins provides a "start to finish" format that reveals the complexities of doing such work at each stage of research, beginning with the study design and ending with the dissemination of results. The authors address the challenges of working with and speaking for these groups of women, the tension between description and interpretation, and the challenge for qualitative work to present findings that positively influence the circumstances of research participants. With a strong commitment to social justice, this volume also shows how participatory research can lead to social change, and indicates effective ways to ensure that research not only reaches, but is also employed in, the communities it intends to serve.

Bridging the gap between a wide range of audiences, this vitally important work will be of interest to health professionals, new researchers, policy makers, new researchers, and experienced investigators, as well as the public.

About the authors

Judy Gould is a research scientist at Women's College Research Institute.

Judy Gould's profile page

Jennifer Nelson is an independent research consultant and is an assistant professor in the Department of Public Health Sciences at the University of Toronto.

Jennifer Nelson's profile page

SUE KELLER-OLAMAN is an adjunct professor in the Department of Health, Aging and Society at McMaster University.

Sussan Keller-Olaman's profile page

Other titles by Jennifer Nelson